There is life after a cancer diagnosis. It’s not all pleasant, but as Mike Marqusee shows us in The Price of Experience: Writings on Living with Cancer, it is not necessary, or even healthy, to accept the enforced isolation of most treatment regimens.

Marqusee, who has already exceeded the prognosis for his multiple myeloma by several years, widens our understanding of what such a diagnosis means for the patient caught up in the complex world of the cancer industry. This is not a confessional cancer story, but a provocative examination of what having cancer in the 21st century can tell us about social relationships, and what an encounter with mortality might achieve.

To begin, the author rejects the common approach to the cancer story, which often portrays the patient bravely battling the disease. This battle often suggests an isolated, lonely existence–and, when the patient succumbs, personal failure. The ideology of fighting cancer, Marqusee notes, “mirrors the bootstrap individualism of the neoliberal order, in which the poor are poor because of their own weaknesses.”

Marqusee’s cancer was diagnosed in 2007. Since that time, he has gone through multiple regimens, including two bone marrow transplants provided by his sister. While we learn about his treatments and their progress, we learn a great deal more about health care in the neoliberal era. Marqusee’s approach takes us beyond the pain of chemotherapy and probing needles, into the complex relationships of patient, medical staff and even “the circling vultures,” like “travel insurers who charge people with cancer 10 times the rate charged to others.”

By broadening his understanding of where he stands in relation to the social, political and economic forces of modern health care, Marqusee finds another therapeutic regimen. Indeed, his relational medicine is a powerful antidote for the isolated patient trapped in a world with no seeming control.

Marqusee challenges the assumptions that govern much of cancer treatment. Making cancer treatment “less brutal would be a huge stride forward for people with cancer. And that requires not a top-down military strategy, with its win-or-lose approach, but greater access to information, wider participation in decision-making across hierarchies and disciplines, and empowerment of the patient.”

As a transplanted American, Marqusee is well aware of the differences between the health care systems of the two countries he has called home.

For example, Britain’s National Health Service (NHS) flew his sister from California to London because she was vital to his care. There is much more to learn in the chapter “A Tale of Two Health Systems”: for example, “of the two million Americans who went bankrupt because of medical bills in 2008, three-quarters had health insurance.”

Yet for all its benefits and superior care, the NHS is under attack and facing severe reductions in services. This will affect all involved, but not equally. For example, the bondholders, who bet on hospital construction, will not lose. Their profits are assured by the trusts that oversee the various hospitals and clinics. Or as Marqusee puts it, “hospitals like Barts will not be run for profit, but by profit.”

To help us understand the impending damage that will be done to St. Bartholomew Hospital–the author’s treatment center–we learn some of the history of this august institution, established in 1123, making it “the world’s longest-established provider of free medical care to the poor.”

No part of the health care complex gets more scorn than “big pharma.” Indeed, this industry holds the whole system hostage. With its average profit margin of 17 percent, the drug companies have no equal in the care industry. Marqusee’s current drug regimen is Revlimid and costs the NHS nearly $9,000 for a 5 milligram, 21-day cycle. “Who knew multiple myeloma could be such a money-spinner?”

Understanding, the role of big pharma in his treatment elicits not submission but resentment: “The way my illness, my vulnerability, has been exploited, used by a group of self-serving parasites to gouge the public purse.”

Marqusee has nothing but gratitude for the care he’s been given. His gratitude does not stop with doctors and nurses, but includes the porters, janitors and even the researchers who began the search for treatments and cures for his cancer in the 1840s. As he puts it, “I’m being kept alive by the contributions of so many currents of human labor, thought, struggle, desire, imagination.” It is this broader sense of community that raises The Price of Experience above other cancer survival stories.

In the end, what Marqusee has given us is a dialectics of illness. He approaches his care, not with resignation, but with a spirit of engagement and a connection to the complexities of modern health care. From a plea for health care providers not to be used by the money managers just because compassion is their calling, to a wonderful appreciation of the contradiction in seeking independence through a community of struggle, Marqusee outlines a survival strategy for all of us.

As he writes: “What we need is not a ‘war on cancer,’ but a recognition that cancer is a social and environmental issue, and can only be fully addressed through far-reaching economic and political change.”

Donate
Leave A Reply

Subscribe

All the latest from Z, directly to your inbox.

Institute for Social and Cultural Communications, Inc. is a 501(c)3 non-profit.

Our EIN# is #22-2959506. Your donation is tax-deductible to the extent allowable by law.

We do not accept funding from advertising or corporate sponsors.  We rely on donors like you to do our work.

ZNetwork: Left News, Analysis, Vision & Strategy

THE WIND CRIES FREEDOM

The Wind Cries Freedom, the new book from Z co-founder Michael Albert, is a sweeping oral history of a future American revolution.

Through thirty interconnected chapters, it draws out the strategies, failures, turning points, and hard-won wisdom of a movement that called itself the Revolutionary Participatory Society. These are not the polished memoirs of politicians: they are the unfiltered accounts of people who organized in neighborhoods, hospitals, universities, stadiums, courthouses, and places of worship, and kept a shared vision alive through cynicism and exhaustion.

The result is speculative political fiction that reads like history: messy, human, and quietly hopeful in the way that only real experience and long thought can produce.

Get your copy and peruse more features on the book’s website below.

“Read it, argue with it, but don’t look away. The future it recalls is one we must still fight to deserve.”

Yanis Varoufakis

“The most unusual and intriguing combination of prophecy, manifesto, and movement building manual that I have ever encountered.”

Bill Fletcher Junior

“This work fills a huge gap in our social movement literature.”

Cynthia Peters

Subscribe

All the latest from Z, directly to your inbox.

This is your article this month.

We’re glad you keep coming back. If Z’s work has informed, challenged, or inspired you, that’s no accident: there are no paywalls, no ads, and no billionaire owners here, and there never will be. Independent media survives because readers choose to support it.

Billionaires fund their own media. We fund ours. Help us reach 1,000 sustaining donors:

Number of donors694
Our goal1,000

Sustainers at $9/month or more receive the digital Z Magazine.

Already a sustainer? Click here and we won’t ask again. Thank you!

Your reading count is stored only in your browser and is never sent to us.

Sound is muted by default.  Tap 🔊 for the full experience

CRITICAL ACTION

Critical Action is a longtime friend of Z and a music and storytelling project grounded in liberation, solidarity, and resistance to authoritarian power. Through music, narrative, and multimedia, the project engages the same political realities and movement traditions that guide and motivate Z’s work.

If this project resonates with you, you can learn more about it and find ways to support the work using the link below.

Independent media is not disappearing because the ideas are weak.

It is disappearing because platforms reward speed, outrage, and algorithmic visibility over thoughtful analysis.

More than 100,000 people read Z every month, free of paywalls, ads, and billionaire owners. It takes fewer than 1 in 100 of them to fund all of it: 1,000 donors who keep Z independent, for everyone, and build what comes next.

Number of donors694
Our goal1,000

Sustainers at $9/month or more receive the digital Z Magazine.

Subscribe

Join the Z Community – receive event invites, announcements, a Weekly Digest, and opportunities to engage.

OUT NOW: "The Wind Cries Freedom" by Michael Albert

Exit mobile version